Chronic Fatigue Awareness Day, May 12
Today is Chronic Fatigue Syndrome Awareness day. Adelle and Grace over at CFS2 have information and advice galore over there.
While I don’t suffer from CFS, I do have a friend who does and it is strange. She looks okay, but she runs out of steam, so quickly. In many ways CFS might be like ADD and depression. You look normal, but there is something wrong. While ADD can be tested for (but only in the sense of take these tests, meet these criteria … ) depression is a little more difficult.
CFS, like many modern-day syndromes, is a scientific quandary. People are truly suffering, but often both the cause and treatment are just out of our grasp. What to do? Learn more and help those who suffer.
Tags: CFS, CFS squared
4 Comments
I don’t suffer from CFS, but I do have Myasthenia Gravis, an autoimmune neuromuscular disorder which effects neural impulses to the skelital muscles. One of the hardest things is that I do look normal (and like a 200 pound 25 year old man) and so people often do not really believe that you are really sick, even non-neurologist doctors and family members. As a paid-up skeptic, I was always on the fence about allot of chronic illnesses, now I see that that (a) regardless of the origin of their suffering, the suffering is real in probablu the vast majority of cases, and thats what really matters, and (b) its a terrible thing to be seriously ill and also have to convince people that your really not faking it. In that sense I am lucky, MG has a nice biological blood test that confirms the presence of anti-bodies. It must be terrible to be a skeptic with CFS…
i am a skeptic with CFS!!!! and when i am feeling “well”, i tend to forget that i was ever sick. so its a really interesting path that i have decided to take.
thanks tris for letting me know about this day. i will celebrate appropriately.
L
oh as usual…i am coming late to this party as well.
figures.
[...] So where have I been? I mean my last posts were May 12 on CFS awareness day, mammoths, and the impending summer hot spell coming our way. Well I’ve been Meshing. Huh? Yeah I was at the Mesh 2006 conference in Toronto. I’ve been wearing my Qumana Blogi Master hat all week so posting about science hasn’t really been possible. I have been blogging my fingers to the bone about Mesh, though, so if you’re interested you can wander over to my "other" blog and read about it (sorry no beakers of coffee there). [...]